on witholding care or treatment. the end is not debatable
Quote:
Thanks for your question. Current guidelines recommend non invasive ventilation (NIV) for people with MND with breathing problems. When the researchers designed the trial, they didn’t know what the effects of diaphragm pacing would be, so it was considered unethical to effectively withhold recommended care (by not starting NIV and only giving pacing). That’s the reason that both were given.
With best wishes,
Research Development Team
MND Association
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Can we see your final draft and not wait