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Old 12-14-2015, 12:17 PM
Patrick Winter Patrick Winter is offline
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Join Date: Jul 2015
Posts: 269
8 yr Member
Patrick Winter Patrick Winter is offline
Member
 
Join Date: Jul 2015
Posts: 269
8 yr Member
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Quote:
Originally Posted by Blue7 View Post
I keep hearing conflicting stories. Some people say it heals, some people say it's permanent. Then I heard that it does heal, but the nerve endings grow differently and you will still be in pain. Then I heard that small fiber nerves grow back at 1mm a day. If you have scar tissue they won't grow right. Even the experts are completely clueless? This is something that people study all their life and have absolutely no clue? Maybe the medical world should just place this under "permanent disability" and move on.

It's been years and years with no clues and no advances, smh. Even people with H.I.V have a better quality of life now. I just don't understand it. Is it better to just lose your limbs completely so you won't feel anything? This just seems like the worst thing in the world to have. It's almost like having a life threatening disease is better because there is better treatment now a day's. Nobody really cares about neuropathy when it comes to science and medicine. Sad.

Honestly I think they don't know. SFN (specifically) is a relatively new classification. They've just given it a name when years ago it was fibromyalgia, dysesthesia or in general - peripheral neuropathy.

i have a hard time believing it heals at 1mm a day. I'd be cured by now. Honestly, i have never heard of someone being cured of it. Reduction in symptoms, less pain, etc. but never a complete return to normalcy. I would be eager for someone to prove me I am wrong on that...
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Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily

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