Thread: Yikes! I start IVIG infusions next Thurs. what questions should I ask??
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Old 06-30-2007, 04:26 PM
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
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Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
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HI KMEB,
Thanks for writing. I'm glad to hear the IVIG is helping you. I hope it helps me as well. I have muscle weakness in my arms, hands and legs, tho I can get around ok. I take Lyrica for the nerve pain and over time had forgotten just how bad the pain was,,,,till I tried a new medication (Topamax) that didn't work at all for me. I was in terrible pain! Now I just want to get well. I love being outside and working in our yard (we have an acre yard that looks like a park). It's a lot of work but I love it.....but right now I don't have a lot of energy to do anything.
I hope you are having a great day! Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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