That is it in a nutshell. I have been to 5 of them. I remained with one and I am down to pain management and 6 month visits. He is very nice and not an egomaniac. He clearly says they just can't figure out why this is happening to healthy young people and that it is suspected to be some kind of an autoimmune process.

I have polyneuropathy through out my entire body and head and it is a complete mystery. I have given up on conventional doctors finding the answer. I have the diagnosis and lab work that tells me that my nervous system is damaged, but nothing else. It is extremely frustrating. I'm not losing hope though.