Hi everyone - So happy to have found my tribe! Long story short my fabulous pain doctor at Emory Pain Center in ATL retired (horror of horrors) and I need any recommendations for a new one. If this forum doesn't allow this can you message me?
A little about me.... I have had RSD in my lower body for 10 years - started with a stress fracture in left foot and spread from there to both sides and up my legs. That's it - no major trauma, no surgery, no fiery darts or swords. It stabilized for 5 years. I must have done too much yoga one week and it flared up this August the point I could not put my feet on the floor to walk for weeks and now.... the first week of November decided to WOO HOO start to spread to my ENTIRE UPPER BODY. Talking even my scalp at this point. Face, neck, ears, chest,stomach, arms, back....... (can you tell I use humor to offset the sobbing?)
You know the drill - cold spots, hot spots - don't touch me with the sheet, shirt, wind or shower spots. I am currently only on gabapentin and I am DYING. One new doctor I saw -that had all the right credentials -looked at me and shook his/her head about what to do on the lower body flare up. Literally. That gave me a lot of confidence in their abilities to help me. Therefore, just reaching out to see what you may think on Dr. rec's.
So, new doctor referrals? And, I've never had this fire and brimstone/cryogenic freezing burning and uber sensitive feeling on 60% of my skin before 22 hours a day - what do you all take for it because gabapentin is not the antidote for me. ?
Wishing you all comfort, sanity and even temperatures -