Quote:
Originally Posted by Healthgirl
If anyone new has been diagnosed with idiopathic polyneuropathy or SFN, feel free to join this thread with your story.
For those of us already here, how are your symptoms lately?
I have some improvement and haven't relapsed to my debilitated state. I can manage most days and can say that I am "ok", just ok though, not fixed. I still have the neuropathy through out my body, but have found ways to manage the symptoms and only use medications only for when it is very bad. I'm still looking for an answer and believe that my nerve damage came from something toxic.
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I started having problems with a right toe when I was 24 then various other areas, left shoulder, neck, both shoulders, arms and pins and needles in my hands. Proceeded to start affecting my stomach more but didn't k ow it was related.
Couple of years ago my feet and legs started to ha e issues with pins and needles. Like ants crawling up and down my legs. But ing sensations on my shoulder, legs or back of arms. This all lead to gait problems and using a cane for a year due to drop attacks.
I'm 41 now. 4 neurologists later finally found out I have small fiber polyneuropathy. Been on medications for 4 months ago. I'm doing a little better. I'm starting to have a life again but the flare ups are just difficult to deal with.
Found this website when I was at a big low. Many of you have provided me with great I formation and I hope to share more about my symptoms.
Thanks!
BK
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