Abbilee,
I'm so glad you checked in. You sound a lot like my daughter...but after 4.5 years we are heading in a much better direction.

She was also told that "it" was in her head. So the one treatment that she has been super diligent is CBT and her psychiatrist is familiar with head injuries.

Last December she had a vestibular test (had to break it into 2 parts) and the testing showed that she has had migraines for 4.5 yrs. her vestibular system was intact. So we are working with Dr Raskin (UCSF) to try to find a medicine that will knock out the migraines. The medication trials are awful because most of the meds make her sick but we are hopeful that we will find something that works. The doctors explained that people can carry a migraine gene and not have headaches until something triggers it. In her case, it was being dropped on the back of her head.

In the mean time, acupuncture helps to reduce her headaches.If we never find a med, she will continue with acupuncture.

Back in April, she got into a study for HBOT in New Orleans. (40 sessions for free). I have read that some people don't have a positive reaction to HBOT...but after a few weeks, she said that she noticed a difference in her fatigue and cognitive ability. The Dr leading the study is Dr Harch in New Orleans. We went through Airbnb for lodging and we were able to get a great price for a room for the 2 months.

Don't give up...my best,