View Single Post
Old 12-18-2015, 01:07 PM
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
Thumbs up Word games

Quote:
Originally Posted by Equine Dentist View Post
Thank you very much. I will check them out as soon as I can. At first it was after back surgery. They said my nerves were tiny and stretched quite a bit. My left foot was restless and felt weird. After time, it was better and I moved on. Two years later, my father died, my mother needed a bone marrow transplant and my husband wanted a divorce all at the same time. It was a terrible time; everything was in his name and I was broke and upset. I couldn't eat and drank my face off. The nueropathy started acting like mad but I didn't know what it was. I didn't even care. I pulled through, will be sober for two years in February and settled the divorce. Doc blames weight-loss and booze. I was 86 pounds and I agree with her. Last February I was told that I have nueropathy and that with time it will heal. In June she called me and told me it was permanent. I called in July and was told it is large fiber when I asked. I just called again and was told it was predominantly axonal sensorimotor polyneuropathy. Just frustrated and very tired. I am trying to learn what to expect so I can accept it now. The letdown of a new symptom is tough, but at least if I knew that it COULD happen, I might not get so down. I am sorry, this week has been tough with pain. I was doing good.
I have heard sooo many DX terms that I am supposed to have. My PCP had DX words on MY paperwork that were never mentioned to me. Let me count some--bilateral progressive sensimotor polyneuropathy-peroneal neuropathy-Amyotrophy- this is just what I remember. I can respect your need to get an idea of what to expect. I just don't think that is possible. I think the Drs will hang some words on you that have little to do with your future progression or recovery. Mine was supposed to be progressive!!! But now I am better. Not as good as I wish but not worse. Don't hang your hopes on what the what the white coats say, they play word games. Merry Christmas, Ken in Texas.
zkrp01 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pinkynose (12-18-2015)