Originally Posted by ellez

After 9 day hospital stay with what was once again thought to be stroke (left side eye/face droop) I was discharged with kinda/sorta MG dx pending labs. Lumbar puncture results still coming in- I can see them now on my pt portal. How long till all are done? It's been about a week. I see some levels reported but nothing too high. ANA/AChb neg but no anti-musk results back in yet. It was supposed to have been drawn last week.

EMG was positive.
Ice test - yes.
Mestinon works within half hour or so.
Without poz sero though I'm still not feeling legit about MG. Educating myself it sure seems like the signs describe my situation fairly well but I worry how much is in my head. Still have all the same symptoms for last few weeks. Fluctuating of course. Left eye ptosis still and muscle weakness all over - off and on. Worst with over-use and heat. Never will I take a hot shower to test the theory again.
*** I'm so confused, frustrated and stranded as I am not allowed to drive till after Neuro visit next week...maybe.
I'm pouring through threads and appreciating all the support and info I see, but again, in a way, I am still not sure I should be here. In the mean time, thank you!