It took me a few years and way too many doctors till I found a neuro who took me seriously, diagnosed the SFN and suggested IVIG. He said this is the recommended treatment for SFN that is caused by autoimmune disorder. So I think you’d better search for a better neuro…

IVIG is very expensive, so maybe some of the doctors prefer not to spend the time and efforts on the struggle for IVIG with HMO. My doctors wrote me many letters, searched papers to justify the request, had to talk with the appealing committee..

After a long and frustrating struggle I got rituximab instead of IVIG. My situation is complicated, I don’t know if this is suitable for any autoimmune SFN.
I don’t know the costs of these treatments in US, here the cost of a single IVIG and rituximab infusion is roughly the same, but it takes only 2 rituximab infusion instead of 10 IVIG infusions during the first 6 months. So maybe there is a better chance to get an approval for rituximab then IVIG, or to fund it by yourself. If it helps it might be easier to get an approval later from HMO.