Member
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Join Date: Nov 2015
Posts: 129
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Member
Join Date: Nov 2015
Posts: 129
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Lots of great, intelligent information in this thread....thanks guys! I have a question and an observation.
Bacground
My dysautonomia hit me with full force this past April....diagnosis (at a glacial pace of course) of Dorsal Root Gangliopathy because ankle and thigh SF biopsies positive. Dysautonomia specialist validates "my" diagnosis and why I think I have it:result of drug toxicity: I had many neurological symptoms from a potent antidepressant cocktail -- went into a hypertensive crisis and then abrupt withdrawal a year ago. Nothing in the literature about this.
However, dysautonomia did not set in until April. I also now have sensory neuropathy.
Question
Q: I had a lag time...could it be these events set off an incipient Sjogrens or some such autoimmune thing? I ask because I have such disabling fatigue..... "sickness behavior," basically bedbound. I have a followup with a rheumatologist, so I will (again) ask for the lip biopsy (she feels it has a lot I f false negatives....) Yet I wish to know for IVIG...
Observation: YES get eyes checked. Went last week to ophthalmologist for dry eye and found I have nerve damage - slight at this time. Threw me.
Thanks!
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