What are people's thoughts on gathering all the info I can on ivig use for sfn and posting it to my neuro? He sees me then fobs me off for 6 months saying he is looking into ivig for me. He really doesn't grasp the intensity of my full body sfn and its apparent now that he just isn't looking into it at all.


My next appointment with my neuro is March. Im seeing another new guy privately in January.

The reason I ask you your thoughts is because I am so conscious of the sensibilities of some of these consultants. As most will know, it's a balancing act of being assertive and pro active in dealing with them but annoy them too much and pay the consequences. I feel they could totally block you and make any further investigatory tests or treatments impossible if they feel they are being patronised or told how to do their job. Any thoughts?

Happy burn free Christmas everyone :-)