Thread: Tysabri Check In, Support and Information Part Three
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Old 12-25-2015, 05:00 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Natalie8 View Post
Welcome to the every 8 week club RW!

One thing to think about too. I read awhile back that Tysabri may be dose dependent based on weight. Skinnier underweight people were more apt to get PML. I have an appt with the neurologist in 2 weeks. I've been meaning to ask how that factors in.
I haven't switched yet, waiting for my next appointment to talk with the doc. I have mixed feelings about the 8 week schedule. he doesn't seem to be in any hurry to switch me to the extended dosing, I think maybe he just didn't want me having it early anymore, even though I have gone as much as four days early, when I was going to be away for an extended period of time.
Maybe I don't have to give up the reins just yet...
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
Grammie 2 3 (01-18-2016), Natalie8 (01-17-2016), SallyC (12-25-2015)