Quote:
Originally Posted by susieh
My son has been diagnosed with rsd and has been in constant intractable pain for almost 2 years now. I am having a hard time finding good knowledgeable clinicians in the Sacramento area and am seriously looking at ketamine infusions. I'd be very grateful if we could chat so I might learn what you've learned in your journey.
Where did you get your infusions and who was your provider?
I'm looking at out of state because I can't find anything here.
My best to you,
Susan
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Dear Susan, Welcome to the forum. I am sorry to hear about your son. I hope that we are able to provide you a place for sharing and support. There are many options for treatment but ketamine does show good evidence in studies. Several protocols are used. I receive a different one than InspireToday and am getting good results with it. I have documented my experience with low dose outpatient infusions given over a period of months. The search feature on the forum will help you find several other posters experiences with ketamine as well.
You will find several California providers on this list of ketamine doctors.
http://www.ketamineadvocacynetwork.o...der-directory/
and here's one in Sacramento
http://www.debruinmedicalcenter.com/...ating-rsdcprs/
If you have not seen Dr. Pradeep Chopra's video "CRPS Diagnosis and Management" you will find it full of helpful tips and treatments.
https://www.youtube.com/watch?v=s3LKhOZ8mAM
One of the very best resources for you might be Stanford's Pain Program. They are at the forefront of CRPS research and are currently studying Low Dose Naltrexone. They do many treatments not offered elsewhere including botox nerve blocks and ketamine. You are in easy striking distance. If I were in driving distance of them, I can tell you I would be there.
Hold on to hope. Improvement is possible and is actually the norm with 80% of people showing improvement over time according to Cleveland Clinic. If there are pain contributors that need to be addressed hunt them down. The disease is easier to treat and beat with underlying problems treated to the degree possible. Keep those muscles working as much as possible without flare and don't give up.
Come see us and let us know what happens.
Sending hugs and healing love,