Such a quandary....we want explanations and hard evidence for our symptoms (not to mention substantiation for disabiliy insurance), but I was devastated by my positive results (received two months ago). I have both autonomic and sensory neuropathy and was hoping it was a one-shot deal (reaction to neurotoxic medication); I thought I would improve.....

Just last week my ophthalmologist said he saw damage in my eyes.....that was a surprise.

Now some autonomic symptoms are improving, but pain is worsening and affected areas areas are spreading......rapidly.

So what can I say?....I would have preferred a negative diagnosis...even though dysautonomia is tough to substantiate. (I don't have POTS).

I'm really struggling with all the issues attendant to having a chronic illness...

Well, on to the new year!

S