Originally Posted by teachermom

Your comment about the muscles not connecting--YES! That is exactly what I tried to tell all of the docs I've seen. I was running on a Saturday and all of the sudden, my legs weren't connected right anymore. I still get that sensation and my legs become very mechanical.

When this first started, I tried every possible non-doc involved remedy. Magnesium, calcium, vit d. I drank tonic water, pickle juice, and bullion. My testing showed that my vitamin levels are all really good. The only positive testing I have had is for antibody jo-1 and SFN.

I also see a massage therapist. But the PT I had a few years back, would also use message therapy. I guess that's why I liked her so much.

It's great that you are able to walk without a walker now. I'm not going to lie, some days I get really scared of what my future will be. I can still run. But standing up after I've been sitting or laying down is very painful. I walk like my grandma walks when I first stand up. After I move around a bit, it's ok, but it's scary to think that eventually it won't feel better.