Hello and Welcome Lillian,

I am sorry you had to come join us but this is a soft place to land. You will find the RSD/CRPS forum a good place for sharing and support. Having a group of people who understand what you're going through and can give first hand experience is a huge help.

Hold on to your recovery and to hope like a bulldog. 80% of people improve over time according to CRPS bigwig Dr. Michael Stanton-Hicks of Cleveland Clinic. Treatment does make a difference and can make you more comfortable even if you didn't catch the early window. One of the most important things is making sure any treatable pain contributors have been addressed. Sometimes this means seeing different specialties and getting different workup or imaging. If all is well then methodically trying different treatments will help find which ones give you relief.

You will find a wealth of information on treatments from a compassionate, non-doomsday CRPS doctor here.
https://www.youtube.com/watch?v=s3LKhOZ8mAM

and some fascinating new findings on CRPS and pain from Stanford researcher Sean Mackey here
https://www.youtube.com/watch?v=Uo1UNea_tfQ

Be careful what you read. There is a lot of info out there which is really worst case scenario and certainly not true for everyone. It will not help you in your fight against this disease. Keep moving and doing whatever gentle exercise you can, be kind to yourself and come let us know how you are doing. You are not alone in this.

Sending hugs and healing love,