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Old 01-04-2016, 05:54 PM
lilyNYC lilyNYC is offline
Junior Member
 
Join Date: Sep 2015
Posts: 54
8 yr Member
lilyNYC lilyNYC is offline
Junior Member
 
Join Date: Sep 2015
Posts: 54
8 yr Member
Smile my experience with PCS

hello all,

happy to be contributing to this forum, xxl and seth both did amazing jobs explaining what to do/what not to do and i don't want to be repetitive. my situation isn't the same as everyone's obviously.
here's what i'll say writing from a place of hindsight.

1.) if you are troubled with severe vertigo, see a vestibular physical therapy doctor - FORGET your neurologist. the PT Doc will ultimately diagnose you, treat you, and you will get better. i've been seeing the most amazing doctor and she is helping me a TON with different exercises and things. if you find you feel more dizzy or more vertigo (two completely different things) after sleeping too much like i did...keep it to 8 hours.
***nausea trick - keep limes handy in the kitchen, whenever you feel that gross, nauseated, feeling like you need to spit about to vomit kind of thing, squeeze half a lime and drink the juice as a shot. helps me every time***

2.) if you can, take time off work. by the grace of god, somehow i got 3 months off from work. i thank my Doc for filling out the paperwork and HR for approving it, if i were to forget the supplements, the physical therapy, medications, and everything else - i'd just want the time to rest and HEAL. this time is so crucial, i wish i hadn't tried to push through...i waited 3 months to apply for a medical leave, imagine if i had applied right after the accident in august - i'm sure i'd be functioning at 90% now versus the 75% i'm currently feeling.

3.) don't let the memory issues mess with you. this was and sometimes still is, my number one problem. my memory is horrible now, things that happened 2 minutes ago feel like they were 2 weeks ago. even 4 months out, i still feel the same. i don't think my memory/sense of time has improved, i've simply gotten used to it. hopefully one day this will clear up, but i won't put money on it. you've just got to adapt. before i realized this, i was suffering with derealization/depersonalization, panic attacks, incredible anxiety - and for what? we all have enough going on already, plus the TBI/PCS, and now this? give yourself a break and only deal with the problems that you can solve...the memory, no one knows if/when/how this will be fixed, so i have had to...and i suggest you also, let it go.

4.) get blood going to the brain, there is something called graded exercise. the principal is that you have a new and much lower baseline of exercise, and you continue to improve upon that little by little. apparently it's helped PCS patients recover much faster than a group of PCS patients who did not. it releases endorphins, it is a distraction, and it'll help when you're at home binge eating because you're too afraid to leave the house alone or go to see friends, haha. don't push yourself too hard, go for 20 minute walks...or less! just get started.

a few months ago, i thought there was no end in sight. i became incredible depressed and was stricken with constant anxiety, crying myself to sleep for weeks. while it is important to stay at home, minimize stimulation, you also need to continue with your life and maintain normalcy. still see your friends, but opt for dinner and a movie - relaxing things. if you need to go shopping, go during on a weekday or earlier in the morning on the weekends when there are less people. write everything down, and just deal with it, you CAN handle this. once i told myself to stop feeling so sorry for myself, gained a positive attitude, it became a LOT easier to handle (hence staying at work for so long before requesting medical leave).

almost 4 months later, i am feeling much better. you will get there too. we may all NEVER return to our normal selves, but you WILL get better. take what you can from it. look at the pros - while heavily outweighed by the cons, and keep it moving.

from this experience:
-i've learned to be alone
-more organized as i have to write everything down
-the more i pay attention to my symptoms, they more they happen! funny thought huh!
-enjoying the simpler things in life
-realizing that i'm blessed to have those who helped me out through this in my life

good luck and hope you all heal quickly.
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"Thanks for this!" says:
seth8a (01-07-2016)