Quote:
Originally Posted by Always_Believe
So sweet! I'm 2 hours NW of Chicago...almost in WI. I did start a community FB group shortly after I moved here to get to know what is available in the area and they have come up with a few other names of docs for me.
Still...thinking maybe the route of amputation would get some measure of life back for me. There is zero quality of life going from bed to potty palace and back again with reruns of NCIS or Married At First Sight playing in the background. 
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The problem with an amputation is that they can never get to the end of the CRPS. What I mean by that is, CRPS is a neurological disease. It resides in the brain, the spinal cord, and every nerve running through our bodies. Our CRPS diseased brains connect to our CRPS diseased spinal cords, which run down the length of our bodies, which have diseased nerves all along the column, which connect to our CRPS diseased feet, or CRPS diseased arms, or legs. So, that CRPS infected limb would have to be cut off along with the CRPS infected brain, along with all of the CRPS infected nerves. CRPS manifests it's symptoms in different parts of our bodies (the pain, the swelling, etc.) that is if I understand what I've been told correctly. In other words, CRPS doesn't have a cure, not even an amputation will end it.