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Member
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Join Date: Jan 2015
Location: IL
Posts: 279
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Member
Join Date: Jan 2015
Location: IL
Posts: 279
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Quote:
Originally Posted by -Spike-
The problem with an amputation is that they can never get to the end of the CRPS. What I mean by that is, CRPS is a neurological disease. It resides in the brain, the spinal cord, and every nerve running through our bodies. Our CRPS diseased brains connect to our CRPS diseased spinal cords, which run down the length of our bodies, which have diseased nerves all along them, which connect to our CRPS diseased feet, or CRPS diseased arms, or legs. So, that CRPS infected limb would have to be cut off along with the CRPS infected brain, along with ever CRPS infected nerves. In other words, CRPS doesn't have a cure, not even an amputation will cure it.
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True enough. My docs can't even decide if it's CRPS or PN or axonopathy. Bottom line is I have 2 permanently damaged nerves and this ongoing knee thing. While I understand the general basis of CRPS, there are relatively few studies that I can find on amputation in CRPS type 2. My logical thought tells me that while my pain/symptoms align with CRPS, it is a direct result of nerve damage. Removing the nerve that is damaged (misfiring) seems then to be a viable solution. I am ok with functioning at a 4-5. I have very limited function at a 6-7 and am toast at an 8 or higher. I wake at a 3-4. Return from the potty palace a 6 on a good day. I haven't had enough good days lately to remember the 6. I am willing to explore the amputation option simply because I believe it is an option still out there to improve my function, my ability to walk/work/cook/clean/shower
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe
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