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Always_Believe · 01-05-2016, 02:09 AM

Quote:

Originally Posted by -Spike-

Ahhhh, so you are not really convinced as to the complete picture of what all you have going on. I so totally get that! My whole pain battle began with Morton's Neuroma which was masking my CRPS beneath it. So, I actually had two separate things going on at the same time in both of my feet. I don't know if you are familiar with Morton's Neuroma or not. It is a matter of a single nerve being crushed by two bones in the foot. They cure the Neuroma by simply removing the nerve from the foot surgically. The only problem with mine was, regardless of the fact that the nerve was removed, the CRPS stayed and has been with me ever since.

So, that leads me to a question. When you say Amputation, do you mean, amputate the nerve and leave the limb? Please educate me.

The only thing I know for certain is the 1st emg/ncs showed damage to my peroneal nerve; the 2nd showed damage to my peroneal and tibial nerves.

I know that I have the temperature/color changes, swelling, burning cold, shooting knife pain. As well as muscle spasms from my knee down. I've had my PCP term it RSD, my ortho call it "this RSD you speak of", neuro term it CRPS, PM tell me it's not CRPS because I can wear a sock and see peripheral neuropathy listed as a diagnosis at my latest pain clinic.

So do I feel 100% confident it is CRPS, no. Do I feel confident that there is no neurosurgical option, no. I have lost faith in the medical field I previously dedicated my life to. I have had 8 specialists in the past year and I have only gained 3 more diagnoses and 5 more meds that I can't tolerate/did nothing and 1 medication I will permanently have to take. Cutting off a leg seems like a (pardon the pun) walk in the park. If removing the nerve would be an option, I would probably opt for that route but I don't believe there is a doctor out there any more that has an interest in patient care and therefore neither above/below knee amputation or nerve excision are going to happen. I fear I may need to move out of the country to find adequate care. I will however, attempt the few leads I have gotten first.

Tomorrow I am heading to the basement to go through the boxes still left unpacked from Aug 2014 to sell/donate/re-pack. I will probably try to get my son to put the recumbent bike together when he comes this weekend so I can theraputize myself - regardless of whether or not I can get up off the floor afterwards.