Quote:
Originally Posted by Always_Believe
The only thing I know for certain is the 1st emg/ncs showed damage to my peroneal nerve; the 2nd showed damage to my peroneal and tibial nerves.
I know that I have the temperature/color changes, swelling, burning cold, shooting knife pain. As well as muscle spasms from my knee down. I've had my PCP term it RSD, my ortho call it "this RSD you speak of", neuro term it CRPS, PM tell me it's not CRPS because I can wear a sock and see peripheral neuropathy listed as a diagnosis at my latest pain clinic.
So do I feel 100% confident it is CRPS, no. Do I feel confident that there is no neurosurgical option, no. I have lost faith in the medical field I previously dedicated my life to. I have had 8 specialists in the past year and I have only gained 3 more diagnoses and 5 more meds that I can't tolerate/did nothing and 1 medication I will permanently have to take. Cutting off a leg seems like a (pardon the pun) walk in the park. If removing the nerve would be an option, I would probably opt for that route but I don't believe there is a doctor out there any more that has an interest in patient care and therefore neither above/below knee amputation or nerve excision are going to happen. I fear I may need to move out of the country to find adequate care. I will however, attempt the few leads I have gotten first.
Tomorrow I am heading to the basement to go through the boxes still left unpacked from Aug 2014 to sell/donate/re-pack. I will probably try to get my son to put the recumbent bike together when he comes this weekend so I can theraputize myself - regardless of whether or not I can get up off the floor afterwards.
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Wow, that must be so hard to not be able to take any meds, due to a lack of tolerance. I can definitely relate to that to a degree. There is a whole list of medications that helped me, yet the side effects were so harsh that I simply could not take them. It took me a very long time to sort through all of the meds that we tried in order to find the few that I can take without too many harsh side effects.
Question: Have you ever tried Voltaren Gel? It is a topical gel and is very good at reducing pain for me. There is also a Ketamine gel mix that works wonders for many people too. Maybe those would work, since they are not ingested.