Quote:
Originally Posted by Av8rgirl
My feet and legs hurt so bad that I can hardly walk and vicodin is just taking the edge off enough so I can at last get some sleep. I don't think I've been this bad in a very long time. It hurts to walk. This is new. Not something I have experienced before and I don't know how to handle it.
This is burning pain, not the tinglies and prickles that I have had before. Last night laying in bed, my feet were also buzzing so bad I kept looking at them wondering what was going on (like I was going to see something  )
|
I do know what your experiencing, that's part of what my exacerbation are like. Have you ever tried Baclofen? When my legs and feet get like that the Baclofen was a life saver for me.....of course your doctor may have a better idea.
The buzzing/vibrations are sensory....fun aren't they....NOT.
I'm betting the amount of time you were out in the heat had alot to do with it.....heat can trigger a full blown exacerbation in many of us.
Do you know if this will affect your participation in the Tovaxin Trial?
Not sure if you care for hugs but too bad

I added a few just to see if I could tick you off