Member
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Join Date: Nov 2011
Posts: 576
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Member
Join Date: Nov 2011
Posts: 576
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Freaking out - IVIG denied (after 5 years)
I am freaking out... I have been on IVIG for almost 5 years, and had several differnet insurance companies we have gone through during that time.. and now it is getting denied... I am a week late and already starting to go downhill.. I am seronegative (with LEMS being at the top of the list).. It saved my life when I crashed 5 years ago.. I was able to work, take care of kids.. though not at all like my "old" self, but at least I was able to function.. I have no idea what we are going to do.. has this happened to anyone, and what did you do? I don't want to crash like I did back then.. it took years to get to the good place I was 3 weeks ago! Healthcare is taking such an awful turn, it truly makes me sick!
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