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Old 01-08-2016, 03:16 PM
4-eyes 4-eyes is offline
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Join Date: Aug 2009
Posts: 642
15 yr Member
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
15 yr Member
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I just went through this in the last few months. You are doing Hizentra right now, right? If so, yes, they will deny it. There is no getting round it. This isn't hopeless, though. Simply have the doctor order Gamunex, which can also be used sub q. Mine was approved that way, although not immediately.

The rest depends on how persistent and skilled your doctor is. Mine is very persistent and went through 3 rejections and 2 face to face peer reviews before I finally got my approval. Unfortunately that all took time, so prepare yourself. Always make sure your doctor goes for the expedited appeal or the paperwork will sit around on someone's desk for weeks.

Try to stay calm. Consider a bump up in pred during the wait. Contact me as much as you need. I know exactly how you feel. I am so sorry you are going through this and yes, it is so, so scary.

Hugs.
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"Thanks for this!" says:
AnnieB3 (01-19-2016), bny806 (01-11-2016)