thank you so much for your reply.. it makes me feel better that you got yours approved in the end! It doesn't make me feel better that so many people are having to go through things like this more and more with all the insurance changes being brought on
Interesting about the hizentra! Why is that, do you know? Is it more expensive? My doc did the Peer to Peer today (I got the rejection letter earlier this week).. and then they told him today that it was denied after the peer to peer.. the crazy part about it was that it was a hematology/oncology speciality doctor doing the denying! My doc said that he would appeal it (I assume they do the fast appeal, since this one took less than a week, but I'l double check), and get a neurologist on the case this time instead, but that he wasn't optimistic.
I am already feeling weaker this week, my eyelids aren't closing all the way at night, double vision and my face just doesn't look "right".. joy.. i've been so thankful to be well controlled recently. It took almost 5 years to get to this point, and i'm terrified of crashing ....
I'm waiting to hear back about the treatment plan while we wait... on top of that, I had my rheumy apt this am and I need to officially go see a hematology/oncology doc since my WBC has been below 3.0 (as low as 2.1, and currently 2.6), for the last 10 months or so... so immunosuppresants while I wait aren't even an option... not a grand day on the medical front... but hey at least I can swallow and breathe, so i'm grateful for that.. and hope to keep it that way!