Member
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Member
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Bebo, I don't have any experience with that particular hospital.
But I would simply warn you that even with good access to good hospitals, diagnosis of MG CAN, take a long time. If you are lucky the blood tests for Achr antibodies will be positive. If not you will need to check for antibodies for Musk and LEMS.
It can be that all of these are negative. You will also need then EMG and SFEMG tests. Even if these are still inconclusive, you may still have MG.
It has taken me 2 years, still with symptoms, still responding to Mestinon, still no diagnosis.
I hope that you are luckier, as I understand that you are travelling a long way, but just be prepared that it might take time.
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