Thanks Limpy.. it is awful that it's happening to so many people.. I honestly don't know what is going to happen, which is just terrifying.. I am feeling weaker today.. and just praying I don't pick up any respiratory illnesses while we are in this awful limbo..
I agree.. I don't think they understand. what's so frustrating is that it was a hematology/oncology doc that denied it.. not even a neurologist.. so he overrode a neurologist at a great neuro facitily.. grrr... I am going to be writing a letter to him personally.. however, he may get a lot of those and not even open it..... frustrating.. it's a helpless position to be in
how have you been??