Originally Posted by IamJenn

Hi all....

It called in sick and im laying here in bed STILL feeling weak as heck, I had to bust out my trusty cane just to go to the bathroom because I can barely walk there on my own. Thank you all for responding and all your concerns. I've felt weak before but NEVER quite like this. Called PM docs office to report what I'm feeling and I'm still waiting for a call back but I doubt it as its already lunch time and half the day is gone. I told my husband last night that if it gets worse that he might have to take me to the ER, but luckily it didn't get any worse but it really hasn't gone away either.

Littlepaw, yeah it worried me tremendously too with the whole not being able to get a sentence out without labored breathing. I really did considered going to the ER but I guess I was so tired I pretty much knocked out early. I hope it's not "another" thing I have to deal with because I'm already dealing with too much as it is! 😞 Thanks again for thinking bout me I appreciate your concern!!!! ❤️

Rsd me....walking in general whether I'm flaring or not is not an easy task. My left leg feels like I'm having to drag it and I got a funky gait...I like to call it my "SWAG" or my "pimp walk" to make me feel better about myself but it's really because it hurts too bad to put full pressure on the foot. Not to mention, I think it's spreading to my right foot too so it's really a bummer for me. I do have anxiety & get the occasional panic attack but this didn't feel anywhere near to it. It's different I can tell. I would LOVE to get into the water to work out, but like you said it's VERY hard to find a warm pool, and there's no way I'm dipping any part of my body into the ocean....which is sad because I live in paradise & I've enjoyed the beach soooo much but now whenever we go there I'm stuck on the sand under a tent with a blanket, sweats and a jacket 😭

Spike, you described it to a T! It literally feels like I'm drugging thru thick mud! It's crazy!!!! When you went to the ER, what did they do for you? I debated heavily about going last nite but fell asleep before I could make the final decision lol. Which is probably a good thing but it wasn't a restful sleep so maybe not. Lol! I honestly feel so exasperated that even getting up & moving in my bed to drink some tea takes so much effort. This hasn't happened before or actually not to this extent, I've gotten weak but never quite like this and it sucks big donkey balls!!!!!!!! I wish I could corral you ALL and bring y'all with me to my drs so they'd know I'm not making this crap up.

Catra121, I get you completely. It's such a pain in itself to have to limit yourself each day for the simple fear that maybe tomorrow I'm gonna go down for the count. I hate that! I don't sleep well every night and I pretty much lounged & watched movies all weekend not too strenuous stuff and I still got wiped out like I did. It's really crazy how this fricken disease can just rip you apart from one day to the next. It's like we live our lives on the roulette wheel never knowing what roll of the dice we're going to get. Pretty crappy stuff!!!!

Hey btw just throwing it out there.....I do work full time for the government but I don't know how much longer I can work. Each day gets harder and harder to manage, do y'all think I should go down the SSDI route & if so where or how do I start . I feel so dumb for asking but I know the clock is ticking and I don't have much time to continue working in my field full time. Any advice is truly appreciated!

Thank you all I have no idea what I would do without you all!!!!!!! ❤️❤️❤️❤️❤️❤️