Junior Member
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Join Date: Dec 2015
Posts: 35
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Junior Member
Join Date: Dec 2015
Posts: 35
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Not sure if it's Neurontin or b12 ...
... but muscle jerks have lessened although still there when I relax in bed at night (or, try to!). I am 2 months into this and just completed 21 1000MG b12 injections. I have good days and bad days; the bad days are pretty bad: I feel like I'm wearing tall boots that are way too tight and there seems no way to get past the feeling. It lasts all day no matter what I do. Also, muscle pain, pins and needles and days like these generate lots of FEAR.
I am learning from reading various posts to be careful of antibiotics and to "keep calm and carry on" as the Brits say. I have read from many of you that stress heightens symptoms.
I do wonder if all PN sufferers experience good days and bad days? And, is stiffness common in the early stages of the disease? I can live with this on good days (which are not TOTALLY good, but manageable).
Thank you again to ALL !
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