Quote:
Originally Posted by JoannaP79
Looking for advice on biopsies. The SFN is today so horrific I can't think straight. It's so so severe deep inside my back passage and surrounding my coccyx. The coccyx area is so severe I want to have my tailbone surgically removed. My cheek buttocks are also absolutely horrendous beyond words. I have zero muscle mass in these parts now also. I want to beg my neuro or rheum to cut away at me to figure out what exact mechanism is at work. Can you request a biopsy of flesh to investigate? Could I have a nerve biopsy from my bum? Can muscle or blood vessels from my bum be examined?
My entire body including face, lips, nasal cavity and teeth are affected by the sfn. I feel like I have gone insane today. My post probably sounds insane. I cannot think clearly. I can't cope with this. I don't know how to do this.
|
Hi Joanna,
So sorry to hear you are in so much pain. I have painful SFN in most of my body as well so I totally understand how hard it is to cope.
Have you tried a pain management doctor and/or clinic? Most often when the Neuro doctors can't help they will suggest pain management.
I pray you get some relief soon.
Cliffman