Maddisongirl well done you for tracking down and proving Lyme. My cousin, who lives in France has Lyme. Hers was confirmed by an excellent primary care doctor where she lives who has a special interest in Lyme. Unfortunately it crossed the placenta of both of her young sons while in vitro so they have to take treatment too I believe. She does very well on the treatment - some sort of antibiotic along with a herbal medicine she gets supplied from Scotland where her family are from.
I was investigated for Lyme a year ago although I felt it very unlikely because I've never lived in a Lyme area. The test came back negative anyhow and it was one run by my neurologist who dies see Lyme disease in his area of Scotland where it is increasing. I am interested in the fungal causes David mentions here. My small fibre neuropathy seemed to start prior to my RA symptoms starting. I'm getting nowhere with investigations however but your news has inspired me to persist badgering my doctors to get to the cause as its progressing slowly but surely and I have this horrible ache in my pelvis now which means it has risen from my groin and seems to be getting worse in my face now too.
I hope you have great success with treatments. Mat X
Quote:
Originally Posted by DavidHC
Madisongrrl,
Thank you for all this. Where to start...
First off, I hope you had a good weekend, though it must have been strange given the bomb that was dropped on your lap. But, again, I'm glad you have some answers.
You've had quite a few twists and turns. I am really rooting for you to improve, and wish I could do more than just hope and wish.
I asked about the herbal antibiotics, because I've done months of research on them and intend to begin introducing a series of them over a two-month period. If I can be of use, let me know please.
I'm convinced that in my case it was some sort of bacterial or fungal infection, or that's my strong suspicion, and that it leaked through my gut, to was worsened by my gut health and poor diet. We'll see what happens in a few months, but one thing you're journey and your efforts have led me to do is to think long and hard about my own past and history. I don't think it was Lyme in my case, though who knows, and thankfully you've provided us with some great resources if any of us suspect it. I think mold or bacteria or yeast are more likely and not via a bite. But who knows.
What else? There's so much here. Well, it made me sad to hear about that nurses poor daughter. But you will definitely have a sympathetic person there, who will actually care. Why is it that more often than not it's nurses who care and are helpful and even knowledgeable, rather than, say, physicians? Rhetorical...
BTW I get night sweats too, but usually after a night of eating very heavily and eating lots of carbs. I was too stupid to stop and realize how I was damaging my body. Now I can't touch carbs, or grains to be more precise.
Well, again, I'm rooting for you. Please let us know how you're doing.
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