I can only empathize at this point. My nerve damage is everywhere. The pelvic pain is excruciating in mid cycle. While I have had improvements from my debilitating stage, my life is affected and difficult. Some days are better than others.

I have the issues with dizziness when walking or standing. It usually passes. Sometimes when I'm lying in bed, I feel like the mattress has someone next to me moving all around on it, then I turn to look and my husband is perfectly still and sound asleep.

They still have not found a cause. The next step is a toxicology dr. who works with people from World Trade Center injury from the chemicals they were exposed to. My neurologist recommended that I see her. I have an appointment set for February and will keep you all posted if she has any ideas.