I'd try to keep this as simple as possible so you don't drive yourself crazy right now. Stress is a big factor in this disease.
I think Ken in Texas had an easy to remember suggestion to not eat anything white except cauliflower. That would cut out white bread and flour, pasta, white rice, white sugar, etc., all which convert quickly to sugar and have 0 nutritional value. You could then add some more commonly shared triggers like tomato and tomato based sauce, spicy foods and sauces, MSG, coffee and alcohol. I'd add to the list caffeinated tea, all sodas, and artificial sweeteners. And finally, be careful with too much fast food. Even their salads have a ridiculous amount of salt.
I wish there was a one size fits all diet plan but it just doesn't work like that. Please remember that my thoughts on what I'd do might not be right for you. You'll figure out what works best for you but it will take some time. If you have more questions feel free to PM me and I'll do my best to answer them.
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Originally Posted by DallasGuy
How long have you had PN and where and how bad, and how much better or worse is it now, if you don't mind me asking? Were you able to eat more things as you have come along or something?  |
I have had symptoms for 11 months. Not as bad as many. The worst at evening/night. They started off with twitching in legs, heaviness in legs, burning in legs, arms and hands, pins and needles same places, stabbing random pains and fasciculations in random places. BTW my hands and feet have always been cold and now if I take something like inbuprofen my entire body gets cold. (I just read your intro post.) My symptoms are much improved. I still have burning but it's usually mild. However the twitches have come back much reduced but still disrupt my sleep. Now I can eat more things without being triggered.
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Originally Posted by DallasGuy
What do you mean by "AND 1 cup of Joe in the morning with 1/2 & 1/2 AFTER breakfast to negate the burn!" So after you eat it the food helps or something? |
Yes, drinking coffee on an empty stomach causes me problems. I have found I can get away with 1 cup if I have my coffee after a healthy breakfast.
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Originally Posted by DallasGuy
Some PN suffers I think mentioned not eating tomatoes? Does that sound right or did I just think that up for some weird reason? |
Yes it sounds right. I can have a few slices without any problems now. I wouldn't start off eating tomatoes and definitely not tomato sauce.
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Originally Posted by DallasGuy
Does butter upset your PN? Does fat in general? |
No. None of the fats I listed upset my symptoms. I can't say about other fats. (I don't eat anything deep fried.)
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Originally Posted by DallasGuy
You said "I also am limiting eggs and nuts right now" Why? Does that hurt you, or other PN suffers? |
I have allergies to a number of things. Eggs and nuts can cause problems so I'm being cautious.
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Originally Posted by DallasGuy
How do you handle eating when not at home? |
I have plenty of foods I can eat so it is not a problem in most restaurants. Even Italian restaurants have fish or meat on the menu. Since I don't have a gluten problem I can have a sandwich on whole grain bread. I just don't make it a habit.