Hi - confused here in the new year and feel like I am wishing my life away waiting for the next Dr. appt, result and drug to work.

Short and sweet - I have been waiting a month and NOT posting this out on the forum but this last two weeks is killing me. Hoping someone can give me a URL or a few words of wisdom because I am only making all my symptoms worse worrying about all of this.....

I finally got in to see a neurologist who listened to all of my symptoms of the past few months that have been acute and some that have been going on for years. Neurologist is sending me to cardiologist specializing in autonomic nervous system disorders because she thinks I have autonomic dysreflexia and he tests for it.

Symptoms:

- burning and sensitive skin on most of body preventing even lightest of clothing, showering, sunlight, air, breezes, touch of others , cannot tolerate any temperature changes (3 months - severe)
-gastroparesis (2 months severe although diagnosed in 2009 it just popped up again)
-tachycardia (resting heart rate 118 for past 3 months) do not DARE do anything to raise it
-fatigue (3 months severe)
-neuropathy/RSD/CRPS in feet/legs worsening incredibly in 4 month period for no reason. I did just have testing for SFN last week which was indeterminate back in 2009
-continuing hair loss
-excessive thirst (3 months severe)
-chronic headaches/migraines where even skin on head hurts (ongoing)

etc.

1. I have NO SPINAL CORD TRAUMA which I read is what AD stems from. I have a clean MRI from 2009 when we were seeking causes of headaches. No injuries.....
2. Blood work all normal except for low B-1 which I just started taking 100mg of daily.
3. Why can't the neurologist diagnose the AD?
4. Everything I google for Auto. Dysreflx. says it is something you immediately go to the ER for but that is clearly not the case with me. Anyone have any insight into other forms of AD that is not out there for easy finding on the internet? articles or research? Other causes besides spinal cord trauma?

5. I asked the neurologist what is causing all the added leg and feet pain - she said the AD may be causing it..... is this possible? My pain docs for the RSD/CRPS are at a loss and not wanting to treat/change things currently.

In the meantime, I have been through 3 courses of low dose ketamine the past month to try and help my RSD/CRPS and it has not helped any. Is it because the possible AD has my body all out of whack?

Any and all help appreciated. I hope all of you are finding rest and comfort in any way you can! Thank you! - Bulldawg95