Hi Jenn,
By what I get from your question is a need of a second opinion on treatment.
If I'm wrong forgive me.
My diagnose was after tests performed by a neurologist. Cat Scans, EKGs, MRIs ect.
As far as I know there's more doctors unfamiliar with CRPS than familiar.
Getting to a correct one is so important.
A PM doctor to the best of my knowledge is on the treatment side of things rather than the diagnoses.
As far as being diagnosed as full body, my diagnose was through my neurologist visits. She could see the progression and the further disability over time. I don't even have a PM my neurologist takes care of that.
I hope you get to the bottom of this...
Take care...