Member
|
|
Join Date: Nov 2015
Posts: 129
|
|
Member
Join Date: Nov 2015
Posts: 129
|
Dear Bg,
I agree with Enbloc, your gastroparesis could precipitate this, but you apparently are not in crisis. I have all your symptoms and a few more. No migraine though. My first neurologist was a waste of time..he dismissed my symptoms rather than exaggerated them, as in your case, but unfortunately this disorder necessitates a lot of Dr. shopping and visits. Big drag when you feel disabled and in pain.
All my symptoms are part of autonomic and sensory neuropathy. This was determined by positive small fiber skin biopsies. My symptoms came in a rush last April as I was recovering from serotonin syndrome. No data on this! Best guess though is that meds were neurotoxic to me.
I found a great cardiologist and just was officially diagnosed with orthostatic intolerance and POTS last week....which was reassuring for I could not figure out why I'm so fatigued. I will have a tilt table test soon.
So I suggest you find another neuro and a cardiologist who understands different types of dysautonomia (not easy --try calling first). Dysautonomia International (DINET) has a physician list.....I found my cardiologist on one of their threads. Great site overall for you.
You may have an underlying condition, such as an immune disorder, to be detected or ruled out, so it may be wise, after you get biopsied, to consult with a rheumatologist.
Since April some of my symptoms have definitely improved....Yet my neuropathic pain is worsening. I am very relieved by my diagnoses. Also by having a few great docs (still looking for a good neurologist!).
It's very important to be accurately diagnosed....for appropriate treatment as well as for receiving disability. Trust your instincts and your research.....a good doc will trust you!
Sylvie
|