Quote:
Originally Posted by Littlepaw
Hi Bulldawg,
I am usually on the CRPS forum but come here from time to time.
It is always wise to get a work up to rules things out when answers are not obvious.
Sadly, CRPS can cause general dysautonomia and many GI problems. If you have had the diagnosis for a while it could be possible that you are having other problems from CRPS now. If your PM is not familiar with this possibility that is a bit concerning.
Also, know that small fiber damage is found in a quite a few CRPS patients as well. Dr. Louise Oaklander has done the studies on this.
There is a data heavy article by Dr. Robert Schwartzmann that may be of help to your doctors. It has a section on dysregulation of the autonomic system. Though I recommend it cautiously as I don't want anyone to read it and become convinced these things are inevitable for CRPS patients...
http://rsds.org/wp-content/uploads/2...ns-of-CRPS.pdf
I am sorry the ketamine is not helping. I hope you find relief and answers soon!
Sending hugs and Healing Love,  |
Well, because I am obsessed, I read the Scwartzmann article and it does trace all your are experiencing to CRPS Bulldawg. Sorry to be judgemental about your neurologist, but I think you should look for a Neuro versed in CRPS...or a pain specialist versed in dysautonomia. I find disturbing it was suggested you have an unrelated debilitating disease.
Why not write a brief email to Swartzmann to see if he knows a good clinician in your area. Littlepaw, how great you are to respond so sympathetic ally with such good information!
I wish you all the best BD!