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Old 01-18-2016, 04:16 PM
RalphD RalphD is offline
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Join Date: Jan 2016
Posts: 4
8 yr Member
RalphD RalphD is offline
New Member
 
Join Date: Jan 2016
Posts: 4
8 yr Member
Default Sfn

Quote:
Originally Posted by Jolene520 View Post
My husband has been on every med that we know of...from Lyrica to 2700 daily of neurotin...from codine, to methadone to percacets...nothing touches this pain...any ideas...and how about more info on this patch...how does that work..and does the doc precribe it?
Thank you
Hi, I'm sorry about your husband. My mother suffers from SFN she has also been undergoing the same horrible pain. IVIG, has helped my mother tremendously for a few months, she even would forget to take her pain meds. Although, unfortunately after several months, the therapeutic effects began to stop. Fortunately for you, her doctor claims that this is not normal and typically doesn't just stop working. Also, I have been doing my own research and found a researcher at Penn State. Dr. Zagon, who's research focused on the therapeutic properties of LDN (low dose nalextrone) for autoimmune. The medicine was originally used for opiate/alcohol dependence disorders. I spoke to him directly about this drug and I quote he said "it should be a winner". Although, the only downside is very very few pharmacies carry this drug. Only, because it needs to be compounded on site which requires a differentiated pharmacy. If you happen to be from NJ or NY. I have an extensive list of physicians who are familiar with this drug and are willing to prescribe it. Hope this helps.

Ralph
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