JoMar what were you diagnosed with in the end? Was it RSI or are you saying it was a misdiagnosis?

Me? I have been writing and on a laptop 5 days a week for 10 years! Lots of high pressure, fast typing too.

*administrative edit per guidelines* So I think I will now have to retype my symptoms - here goes!

• Right foot droppage - note , not sure if this is genuine as i do have one hip higher than the other, my right hip being lower, it sometimes feels my leg is shorter! so that may actually be the realissue, plus muscle weakness.
• fatigue
• tongue 'tickle'/light zap or maybe its a spasm in one tiny patch. doesnt last long and doesnt hurt. like a light zap
• exhaustion for no reason
• depression
• anxiety
• seeing things in peripheral that aren't there - shadows, movement, colour
• muscle spasms/fasculations all over - first they were painful in parts (right foot, right hand, butterfly feeling in belly muscles,)
• Muscle fasculations all over, left and right side - no discrimination. could be any part of body - light butterfly type sensation - doesnt last long and then goes
• strange zaps and electric sensations through body inv arious parts and on both side of body
• vertigo! sometimes manageable other times disorienting. felt like i was on a boat
• slight finger tremor (up and down) , very subtle but strong internal 'vibration'
• right hand ring finger sideways waggle - these muscles are all very tight through fingers (pinky and ring) all the way up my forearm and even my shoulder - feels almost dislocated at times? got a lot of clunking going on in right side. got some clunking in shoulders on left side too - not as bad
• terrible muscle weakness all over. tired from just lifting arms and brushing hair
• at one point i was craving bananas like CRAZY!!!! Before i saw the dr i ate about 15-20 a week. It was an intense craving
• Forgetful
• Brain Fog
• Tingling. Felt local to right side but then was on left side too
• Pain sometimes behind right eye - then a migraine would come on.
• Overall tightness in back and neck - sometimes jsut feels i need a chiro to crack the ***** out of everthing and put it all back in place?!
• Couldnt recall certain words - normally as a writer my vocab is super strong.
• waking up with an inner vibration feeling - very unnerving and stressful. felt it from within and could see it in hands. would calm down a few hours after waking
• Early in 2015 had a weird thing happen - was working at computer and stressed, typing fast and talking same time. Suddenly my vision went strange, like wavy/blurry. It totally freaked me out - i told colleagues i had a migraine but truly i couldnt see them very well. Then in about 15 minutes it totally passed and was normal again. I had a slight headache after. I have suffered from bad migraines in the past.
• Again about 6 months later another strange thing with vision. Was working in sunshine and on computer again - stressed (theme here?!), and wavy vision again - headache with it this time. as soon as the headache went, my vision was fine again.
• couldnt stop sleeping! guess that was part depression but also deeply felt my body needed to 'recover'

So! Sorry for the LAUNDRY LIST everyone! But I had to get it all out there.

Now. My blood test came back with Vitamin D3 at 6 ng/ml and D2 at 2.4ng/ml. That's low! The more reading I did on the net, the more I realised at least some of these symptoms may be attributable?

I took a booster of D at Docs recommendation. Honestly - after 1 month I feel like myself again. Literally everything on that list has improved. The depression and mental fog lifted week by week.

The crazy constant butterfly muscle spasms have reduced significantly - still there but i would say 75% reduction.

The hand and internal 'vibration' i could feel and noone could see has stopped altogether.

The finger sideways waggle remains - but lessened. Not sure if thats cause i have been doing massages and acupuncture for tendonitis in right arm? or Vit D? Dont know if its muscoskeletal issue or neuro.

I do know I constantly have burning pain when i type - in my righthand, particular to my ring finger and pinky. also my right hand is always cold! my fingertips especially.

But anyway, I bought some cheap imitation converses. I went for a walk before my VIT D treatment. I was already super weak but determined not to stay depressed. On my walk I felt tingling pretty much everywhere, but mostly in right leg. Then i just had to sit. I dont know if i imagined it but my right leg felt 'lazy when i walked. but seeing myself in the reflection i looked totally normal when walking. my leg just felt - too light or something. like i couldnt feel my foot land as well as i had before? maybe bad circulation? anyway . walked home alright just felt weird. also tripped on concrete slightly - though these shoes are a little 'floppy' big and not well made. when i walked with my nikes and after vit d treatment - i consciously focused on my walk and had no trips or strange weak feelings. i am hyper aware of one hip being higher though, and was once told to wear a special insole on my right foot. wondering if now i am paying the price of not doing that!

anyway now i can sit up and type. I can wake up at a normal time (10am). I am not constantly spasming - i am not brain foggy and depressed. I remain slightly anxious - but thats because my Dr gave me 'the face' when i explained my symptoms. He first thought essential tremor, now he wants to rule out MS. mind you, there has been no follow up assessment from him. he just saw me at my worst. Im not convinced he is a 'good' or even slightly 'thorough' dr.

Another Dr said RSI and anxiety. But still to go to neuro. But she took the time to assess my muscles and see if their was wastage or anything, and compressed nerves in wrist to see if it tingled etc.

My acupuncturist - chinese dr said i have tendonitis badly on right side and some liver expel issues plus generally stressed and 'sad'. haha. yay!

My neuro is late feb - *administrative edit per language filter guidelines* Just got married and started my life. I keep being paranoid about any little symptom now. keep staring at my outstretched hands to assess a slight tremor. I test my memory worrying about alzheimers. I keep youtubing sideways finger waggles and MS.

I dont know why im so convinced I have MS. I hope I dont. I guess i want to prepare myself if it is?

Magnesium and Vit B seems to have helped me a lot too. The magnesium I take is normally H&B 500mg. As I was told with my D that low, i was surely super deficient in Mg too.

Now due to budget (not working right now), im on Boots Mag & Calcium combo. It does have mag oxide! its 800 calcium and 375 mag. I honestly only bought this one due to money issues and an interim solution. i know for sure the H&b brand is better and i also 'feel' i need more MG over calcium. it somehow balances my muscles. Ever since stopping the old brand, my little fasculations and muscle butterfly twitches are back. Only slightly, but it was an interesting observation.

My vit B12 was 467ng/L. Serum folate was 9 ug/L

I was concerned that my Red Blood Count was 4.83 (10*12/L). that's the high range for this report.

Also my Red Blood Cell Distribution Width was 14.3% which is the high range for this report also. What does that mean exactly? Nurses, anyone?

Corrected serum calcium 2.16mmol/L - lower than normal range.

If anyone has any inklings - let me know!

Otherwise I will say - vitamin D made me feel SANE again. Thank God. I felt so miserable and not myself.

I am convinced Magnesium helped a bucket load. And maybe I'm the type that needs a higher B12 baseline.

ANYWAY! Sorry for the ramble appreciate any thoughts and hope I can help people on here too with my experience and ideas

LondonLady