Hello and welcome to the NeuroTalk Support Groups.

I just wanted to let you know that there is a forum here at Neurotalk at the link below that includes your condition.

Occipital Neuralgia and other Cranial Neuralgias Forum
For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia.

I hope you find some answers.