Bebo, Okay, you live in Cairo. Can they send the MuSK antibody test to the US to be done? A negative AChR test doesn't mean that you don't have MG, or LEMS (Lambert-Eaton Myasthenic Syndrome) or a CMS (congenital myasthenic syndrome).

Antibody tests can be negative at first and positive later on in the disease process. The antibodies might be too busy attacking the tissues (tissue bound) for them to circulate!

Here's a great source of information—for your doctors, too.

http://neuromuscular.wustl.edu/synmg.html

Traveling is not advised if you have MG and it is not stable. Have they checked your oxygen saturation (O2)? Your breathing with pulmonary function tests? A person's O2 can drop much lower while on a plane. And traveling causes a lot of stress on MG, making people weaker.

France has a great MG/CMS institute.

http://www.institut-myologie.org/en/

Dr. Bruno Eymard is the doctor to see.

Let us know how you're doing!

Annie