Quick note, at present I have so far found 38, 31 and 34 pacing ALS patients in 2012, 2013 and 2014 respectively. Only 13 for 2015 so far but not too unusual as many patients do not immediately disclose their medical strategy.

I saw a report in only one apparent news source indicated about 6,400 patients had died in 2014 several months into 2015 . . . recently ALSA apparently updated their statistics to say the expected number of diagnoses each year is now 6,400 . . . up from 5,600 . . . known since at least 1999.