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Old 01-20-2016, 08:25 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
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Thanks Annie- Yes I take mythlcobalmin 5000mcg once a day... They haven't said too much.. most doctors think it's caused by the IVIG.. I have read that IVIG can cause transient leukopenia, but i can't find anywhere that it can cause long standing leukopenia - have you?

Since it has been so persistent, and so low they want me to see a heme/onc doc now.. the rheumy said she see's this a lot with lupus and autoimmune issues.. but still thinks it's ivig related. however she wants to rule out cancers obviously before chalking it up to ivig.. I dont' think throwing immunosuppresants on top of that would be a very good choice.. I don't feel like they think it would be that big of a deal though.. they said they would just monitor my wbc.. .but if it's already low.. then why would you even start them?
I am really struggling from that IVIG break.. I forgot how awful this all feels
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