Hi Cliffman,
I see what you mean. I mean, perhaps I'm wrong, but I would describe mine as acute or subacute, thanks to a clarification by Maddisongrrl a while back. Mine spread over about the same number of months. Of course, I look back, as I've said, and see some signs going back months and even a few years. I don't think they just know very much about neurological issues, PN and especially SFN. They are reaching in the dark as far as I see it.
They've not found my cause either, but I like to think that it's inflammatory or leading to inflammation and once that's cooled, if it is at some point, the nerves can heal. Do I think I'll eve be 100%? No, I don't. It's probably more likely that I'll degenerate even more. But this ailment is just so unpredictable.
Thanks for posting this. I found it useful.
Quote:
Originally Posted by Cliffman
Hi David,
No, I'm not really surprised just confused as to what constitutes an "acute onset". For example mine spread to most body parts in 6 month's but I'm not sure that means "acute onset". The reason I question it is because they have not found the cause of my SFN and there was no mention of looking for elevated spinal fluid protein. Plus, I was told IVIG would not help. I suppose in most instances by the time they do find the cause the damage has already been done.
Cliffman  |