I was just going to write a post looking for some supplement help when I read yours and it is almost exactly my same story except that I am 4 months in. It started out of nowhere back in September. I woke up one morning and felt my toes slightly numb and frozen feeling and tingling from my feet to my knees. Prior to this I felt no symptoms and had been a completely healthy and very active person. I tried to ignore it for a few days thinking it would go away but it never did. Went to my doctor and she had some bloodwork done all of which was normal. The feeling persisted for another 2 weeks with burning feeling whenever I had shoes on. I was freaking out thinking I had MS, being that a cousin of mine does. I went to see my first neurologist and his initial exam and spine MRI’s did not reveal anything. He said to wait another week to see if it would go away and if not he would send me for an EMG/NCS test. After that test was normal, he pretty much gave up on me so I went to another neurologist who has been great so far. She sent me for extensive blood work checking for everything.

One of the three abnormal results was low vitamin D, but it was 29 ng/ml and the standard range is supposedly 30 – 100 ng/ml. The second was my Vitamin B6 level which was really high at 127.2 ng/ml when the standard range is 2.1 -21.7 ng/ml. This may have been skewed because about a month before, I started taking B-Complex with 100mg of B6 in it thinking it would help my condition and I only stopped it two days before the test. I had only been taking a multi-vitamin with 3mg of B6 in it before all of this started. Once I learned that B6 Toxicity can cause PN, I stopped the B-complex and the multi-vitamin. I will get my B6 levels checked in the next few weeks to see if it came down. The third was a slightly high number on the 2 hour glucose tolerance test which could indicate prediabetes. I have since curtailed sugar, started eating healthier and upped the exercise.

My Neurologist sent me for a QSART test and I will find the results next Thursday at my appointment. I have been taking Gabapentin since November and am currently up to 1200 mg a day. I don’t know whether it is working or not because I still have my symptoms. Hopefully I can find the cause and hopefully start healing. This is definitely has had a huge affect on my life and it is driving me crazy.

I also take:
5000 IU Vitamin D3 (Once a day)
2000 Micrograms Methyl B-12 (Once a day)
1000 mg Acetyl L-Carnitine (HCI) with
600 mg Alpha Lipoic Acid (Once a day)

I am going to start fish oil but I need some help with what dosage and brand. Should I also be taking magnesium? Anything else I should be taking? I will take whatever I can if it helps.

This site has been a tremendous help so far.