Hello
I'm new here, having just been diagnosed with TOS. although I've been telling everyone for 3 years! I feel your pain tho. I found if I keep moving (slowly and methodically) everyday it's not as bad. If I overwork it AAHHH the muscle pain is a killer! (I no longer have all the feeling in my left arm from the nerve damage ) But it never locked up on me. That sounds like scar tissue or the lack of fibrins left in the muscle (the stuff which gives the muscle elasticity).
Where in NJ are you? I also live in NJ. South of Trenton in Burlington Co.
It's nice to know someone else in NJ who knows what I'm dealing with. The family just doesn't understand the daily struggle working and running a horse farm has on my arm.
Who is your doctor? I found mine thru a friend who works at Deborah heart and lung. He was actually recommended by the chief of cardiothoracic surgery.
I have one more test before we talk about surgery and frankly I'm alittle scare with some of the results I've been reading about. Although I wonder if all these doctors were general/vascular/thoracic or cardiothoracic dr's. (I work for gen.vas/thoracic drs AND WE DON'T DO THESE SURGERIES due to the high risk!! We leave them up to the cardio guys. I'm very confident in this guys work but the rehab has me gringing. I almost don't want to have it done.
Are you looking into surgery or are you going to do PT?
Either way good luck.
horsemommy