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Old 01-23-2016, 09:36 PM
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ElaineD ElaineD is offline
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Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
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I have an immune disorder called CVID, which is a Primary Immune Deficiency.

Not only does my immune system fail to protect me with adequate antibodies, it also attacks my systems and organs doing damage.

By the time I realized I had small fiber neuropathy, last fall, I had so many other conditions going, and I was already 73, that I just rolled with it, and now I take 3600 mg of gabapentin daily, which stops the worst of the discomfort.

I'm curious to know what problems SFN causes besides acute discomfort. It doesn't seem to damage anything in my body, but I have had so many other damages so much earlier that I may not have connected SFN with lung damage, or nerve damage to my legs (Profound PN) or all the other miseries.

So many here have SFN and are taking it very seriously. I suppose if it had been the first thing to show up and I was 25, I might have been more worried.

The worst was the feeling of hot needles sticking into the end of my fingers. I'm so glad that is gone.

Hugs, ElaineD
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