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Member
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Join Date: Jan 2015
Location: IL
Posts: 279
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Member
Join Date: Jan 2015
Location: IL
Posts: 279
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Quote:
Originally Posted by PurpleFoot721
To be honest, they sound like they are pushing you a little to hard. There does not seem to be enough communication between therapists, doctors, nurses, assistants... and patients. I can understand pushing a little to get through short gains and goals 1 day at a time, but having that amount of swelling on the first day sounds like it would be more of a setback. I would try talking with the members of your rehabilitation team to make sure they realize that you can't handle all of what they are asking you to do without serious setbacks.
I know it was difficult for you to get into the program, and only got in because of a last minute cancellation. If they continue to push you beyond your limits and don't want to listen to your needs, are you able to go someplace else that may go at a pace you are more comfortable with? A place that will listen to you. It's your body. Nobody knows it better than you. If you feel you are being pushed to hard, make sure they know it and slow down to your pace.
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The whole way home my mom kept saying "I can't believe they can't have this all on one floor. I mean, everyone that comes is in pain and they have you all over the place!"
I was actually just talking with my daughter about that tonight (incidentally, my mother called my daughter to make sure she was doing the dysinhibition exercises - and I only missed ONE tonight!  ). The OT gave me a pain pyramid and told me they want me to stay in the green. If I get in the yellow too much, they will have to re-adjust the plan. Well...I've been in yellow/red since getting home. If I'm at an 8, I sure as hell will not be doing anything that has the potential to take me to a 9 or 10. (And, as it happened, something shot through my knee tonight putting my leg warmer on that put me in tears - my 10).
I think they need to try a little harder to get my pain to a more manageable level before they can add even the smallest of exercises. The dysinhibition doesn't seem to bother me much, so that will continue, but my foot was too swollen to put on the shoe and I sure was not going to rub on an already swollen, cold, hurting foot.
I will try again tomorrow. I am not giving up but I can't push further than I already am.
Thank you for seeing what I see purple 
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe
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