View Single Post
Old 01-24-2016, 05:43 AM
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
Default

Quote:
Originally Posted by Healthgirl View Post
I would start writing things down that he says just in case.
I thought my daughters symptoms were just a coincidence or that she as empathizing with me. It wasn't until she mentioned a symptom that she never would have known I had (personal), that I realized it was real. Then over the summer with in 2 weeks of each other we started having a neurovasular reaction from the sun and it was quite obvious that something was going on.

My neuro thinks we were exposed to something that triggered some autoimmune process and that there must be a genetic predisposition.
I never had any symptoms like this as a child. This is clearly something that happened to us. No doctor has any idea what to do.
Did you have genetic testing sc29a gene? Mine is thought inflammatory autoimmune. I've just heard yesterday I've been approved for ivig. My older son is fine. How's your children now?
LouLou1978 is offline   Reply With QuoteReply With Quote